We went to Madison yesterday. They told us ahead of time that the first MRI after the first round of radiation/chemo would probably be bad, even possibly showing growth because the radiation is still working and the brain is still irritated from the 6 week assault on it. So, yesterday he had the MRI and the results were: GREAT!!!!!! There is no recurrence of the tumor that he had removed and the secondary focus (the other spot in the top back that was smaller and where they cannot do surgery) is "entirely stable" and the report even shows "some resolution of tumor" -- I'm not sure if this means it has shrunk or that the dead cells are already being reabsorbed -- either way it was good news.
It was an all day trip -- mostly we had to wait a lot for blood work and then the new round of chemo meds - in between meetings with Dr Ian and Diana.
He started the new protocol of chemo last night -- he is in the group that gets 5 days of chemo drugs and 23 days of and it will probably last for 12 months. He was on 175 mg during the radiation and now he'll be taking 350mg of Temodar. I haven't talked to him yet today to find out how the first night went, but we weren't really expecting it to be too bad -- they anticipate everything at UW Madison and they've been doing this a long time, so they even know when to expect a drop in his blood work counts. They've armed him with anti-nausea meds and even provided a drug that works as an anti-seizure, anti-nausea, and sleep aid all in one!
Just wanted to let everyone know how it went and thank you all for the prayers and good thoughts -- keep them coming! (Ian also told us he has a patient that has been in remission 3 years, which usually leads to 4 years and at 5 years he considers them cured! --- So that's the goal!)